Monday, January 5, 2026- Former Little Mix singer Jesy Nelson has shared devastating news about the health of her twin baby daughters. In a deeply emotional social media video, the 34‑year‑old revealed that her eight‑month‑old girls, Ocean Jade and Story Monroe Nelson‑Foster, have been diagnosed with a rare and severe genetic condition called spinal muscular atrophy Type 1 (SMA1).
Doctors have told Nelson that the condition affects every muscle in the body and that her daughters are probably never going to be able to walk or regain neck strength, meaning they will live with significant disability.
SMA1 is a rare neuromuscular disorder that leads to progressive muscle weakness, affecting movement, breathing, swallowing and other essential functions. The twins were born prematurely in May 2025, and concerns first arose when they weren’t showing expected leg movement and were struggling to feed properly.
After months of hospital visits and testing, the diagnosis was confirmed. Nelson described the past few months as “grueling” and the most heartbreaking time of her life, but she says her daughters have already begun treatment, which was essential for their survival and offers hope that they may defy the odds.
Nelson has been open about the emotional toll on her family and is using her platform to raise awareness of SMA, urging other parents to seek help if they notice early warning signs in their children. She expressed gratitude for the medical care her twins are receiving and said she believes they can “fight this,” even as she grapples with the reality that their development may be profoundly affected by the disease.
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